Family Empowerment Resources
Louisiana Family to Family Health Information Center
Information Specialists are parents of children or youth with special health care needs. Uniquely qualified to understand the issues and concerns of families who have children with special health care needs, specialists assist in locating resources in your community, our state and nationwide that will help you support your child.
F2FHIC provides support to families; provide information to families on their child's health care challenges and on navigating the health care financing maze. F2FHIC also provides free trainings on services and resources available to families and on how to advocate for better health care services in our state. http://www.blfhf.org/f2fhic/index.php
Families to Family Health Information Center
Kim Detillier, Executive Director
286 Hwy. 3185
Thibodaux, Louisiana 70301
800-331-5570 or 985-447-4461
Louisiana Parent Training and Information Center
201 Evans Road, Building 1, Suite 100
Harahan, LA 70123
The Family Village- An excellent resource for learning more and understanding various health conditions.
University of Wisconsin-Madison
1500 Highland Ave.
Madison, WI 53705-2280
March of Dimes, Louisiana Chapter
12015 Justice Ave.
Baton Rouge, LA 70816
National Dissemination Center for Children with Disabilities
Serves the nation as a central source of information on disabilities in infants, toddlers, children, and youth, IDEA, No Child Left Behind (as it relates to children with disabilities), and research-based information on effective educational practices.
PO Box 1492
Washington, DC 20013
United Cerebral Palsy (UCP) of Baton Rouge
Cerebral Palsy/Developmental Disabilities
UCP/Baton Rouge--McMains Children's Development Center
1805 College Dr.
Baton Rouge, LA 70808
United Cerebral Palsy (UCP) of Greater New Orleans
2200 Veterans Memorial Blvd., Suite 103
Kenner, LA 70062
Cystic Fibrosis Foundation: Louisiana Chapter
4621 West Napoleon Ave., Suite 207
Metairie, LA 70001
Cystic Fibrosis Foundation (National Headquarters)
6931 Arlington Road
Bethesda, MD 20814
800-FIGHT CF (344-4823)
National Down Syndrome Society
New York, NY 10012
Down Syndrome Association of Acadiana (DSAA)
PO Box 81323
Lafayette, LA 70508-1323
Down Syndrome Awareness Group of Baton Rouge
PO Box 82378
Baton Rouge, LA 70884-2378
Families Helping Families SWLA/Up 4 Downs of SWLA
2927 Hodges St.
Lake Charles, LA 70601
South Down Syndrome Association
PO Box 272
Westlake, LA 80669-0272
The Down Syndrome Association of Greater New Orleans
PO Box 748
Destrehan, LA 70047
Up with Downs
450 Railsback Rd.
Shreveport, LA 71106
Spina Bifida Association (SBA)
4590 MacArthur Boulevard NW Suite 250
Washington, DC 20007
Spina Bifida of Greater New Orleans
PO Box 1346
Kenner, LA 70063
National list of Spina Bifida clinics