Family Empowerment Resources

Louisiana Family to Family Health Information Center

Family EmpowermentInformation Specialists are parents of children or youth with special health care needs. Uniquely qualified to understand the issues and concerns of families who have children with special health care needs, specialists assist in locating resources in your community, our state and nationwide that will help you support your child.

F2FHIC provides support to families; provide information to families on their child's health care challenges and on navigating the health care financing maze. F2FHIC also provides free trainings on services and resources available to families and on how to advocate for better health care services in our state.



Families to Family Health Information Center
Kim Detillier, Executive Director
286 Hwy. 3185
Thibodaux, Louisiana 70301
800-331-5570 or 985-447-4461

Louisiana Parent Training and Information Center
201 Evans Road, Building 1, Suite 100
Harahan, LA 70123
504-888-0246 (fax)
800-766-7736 (toll-free) (email)

The Family Village- An excellent resource for learning more and understanding various health conditions.
Waisman Center
University of Wisconsin-Madison
1500 Highland Ave.
Madison, WI 53705-2280



March of Dimes, Louisiana Chapter
12015 Justice Ave.
Baton Rouge, LA 70816

National Dissemination Center for Children with Disabilities
Serves the nation as a central source of information on disabilities in infants, toddlers, children, and youth, IDEA, No Child Left Behind (as it relates to children with disabilities), and research-based information on effective educational practices.
PO Box 1492
Washington, DC 20013

Cerebral Palsy

United Cerebral Palsy (UCP) of Baton Rouge
Cerebral Palsy/Developmental Disabilities
UCP/Baton Rouge--McMains Children's Development Center
1805 College Dr.
Baton Rouge, LA 70808
Fax: 225-922-9316

United Cerebral Palsy (UCP) of Greater New Orleans
2200 Veterans Memorial Blvd., Suite 103
Kenner, LA 70062
Fax: 504-461-9976

Cystic Fibrosis

Cystic Fibrosis Foundation: Louisiana Chapter
4621 West Napoleon Ave., Suite 207
Metairie, LA 70001
Fax: 504-889-2592

Cystic Fibrosis Foundation (National Headquarters)
6931 Arlington Road
Bethesda, MD 20814
800-FIGHT CF (344-4823)

Down Syndrome

National Down Syndrome Society
666 Broadway
New York, NY 10012

Down Syndrome Association of Acadiana (DSAA)

PO Box 81323
Lafayette, LA 70508-1323

Down Syndrome Awareness Group of Baton Rouge
PO Box 82378
Baton Rouge, LA 70884-2378

Families Helping Families SWLA/Up 4 Downs of SWLA
2927 Hodges St.
Lake Charles, LA 70601

South Down Syndrome Association
PO Box 272
Westlake, LA 80669-0272

The Down Syndrome Association of Greater New Orleans
PO Box 748
Destrehan, LA 70047

Up with Downs
450 Railsback Rd.
Shreveport, LA 71106

Spina Bifida

Spina Bifida Association (SBA)
4590 MacArthur Boulevard NW Suite 250
Washington, DC 20007

Spina Bifida of Greater New Orleans
PO Box 1346
Kenner, LA 70063

National list of Spina Bifida clinics

La Deaf Blind Project
Does your child or student have hearing and vision loss? If so, LSU's Human Development Center's Louisiana Deaf Blind Project can provide:

 • Information on deaf/blindness including effective strategies to support children and youth with  hering and vision loss
• Family Support
• Webinars
• Training
• Technical assistance
Services are confidential and are provided at no cost to school districts, families, or service providers.

LSU Health Sciences Center Human Development Center-LADBP
1900 Gravies Room 1035
New Orleans Louisiana 70112
(504) 555-7585
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